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I've read the entire Kafka Pandemic blog and I really recommend anybody with these conditions to read the whole blog. I'll put a link to it. And I think once you deprogram yourself, the next thing to do is to educate people ... -- Youtube video



POLL: This question relates to our strategy.

RIGHT NOW, will the health authorities and industries change more if we COMPROMISE (accept, appease, cooperate, go along with, explain, give them what they want, seek common ground, etc.) or OPPOSE (fight back, resist, seek allies, show our strength, organize, etc.)?
Choose the closest answer.

(Also, how many times did you leave the house in the last 365 days (for any reason)?
)

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[Update: the poll got reset to zero recently, presumably due to a bug, don't know if it is updating. It might come back with your vote intact.]

What strategy will make the authorities change?

Sunday, October 27, 2013

Why some diseases are wronged

In this post we take misopathy apart. (If you don't know what misopathy is, that's explained too.)

We will try to find out why some diseases are wronged.

Misopathy comes in many forms, but I want to tell you about three levels:

  1. ordinary
  2. institutional
  3. organized

Let's start with level 1.

Level 1: ordinary misopathy

Ordinary misopathy is like ordinary racism, except with diseases. It is a form of prejudice. It sometimes involves scapegoating, ganging up, and so on.

Example: when your doctor assumes you are morally deficient because you have a serious immune disease, and then fails to treat, that is ordinary misopathy.


A woman in Berkeley, CA warned her neighbors that her body had trouble with certain classes of chemicals. They then put snail poison under her window.

It made her sick. She was lucky enough to survive for a couple of years, but none of her acquaintances seems to know whether she is alive now.

The levels are linked

Now here is the thing: the levels of misopathy are linked.

In particular, ordinary misopathy sometimes exists because of sanction by authority. Some at this level have a sense for what is OK to attack (they "get with the program"); others go along with what they are told.

And that authority is the next level up:

Level 2: institutional misopathy

Institutional misopathy can involve things like:

  1. indolence
  2. ignorance
  3. apathy
  4. moronicity
  5. cracks in the system
  6. moral cowardice
  7. legacies
  8. biases
  9. fallacies
  10. opportunism
  11. oversights
  12. groupthink
  13. doublethink
  14. dogma
  15. and amoral glossing-over

Examples

Example: when hospitals fail to provide a place to lie down or fail to provide sufficient painkillers, that can be institutional misopathy.

When people die because of bureaucratic policy, that can be institutional misopathy. It is a form of institutional behavior.

Its character

At this level, reptilian brains reject the right thing, because they think it is career-limiting. Their tongues flick at insects, but they do not move.

This is the level at which evil is mechanized and made banal. The greatest evils in this world are implemented via rubber stamp.

Yet there are also people who would do the right thing (and even stand up to do so), but were given the wrong facts.


Also at this level, myths (and euphemisms) reassure people that they are not causing significant harm.

Those myths are instrumental. Nobody wants to question the myths. They look the other way.


At this level, moral cowardice is considered normal. Leaders choose to follow. Status quo preservation is among the highest duties.

The levels are linked

Again, the levels of misopathy are linked. If we do not understand this, then we cannot understand misopathy.

In particular, institutional misopathy sometimes exists because incentives — and the facts that are made available — were set up or influenced that way.

That is done at the next (and final) level:

Level 3: organized misopathy

Organized misopathy is coordinated plans of action.

These are specifically directed against a population of sick people (or people who are likely to get sick).1, 2

Sometimes the group finds itself singled out, dehumanized, or framed as a threat to society, and can't figure out why.

Examples

Examples: tobacco industry, Action T4, Camelford, lead paint, asbestos, Muslomovo, early HIV/AIDS. I've mentioned more in these pages.

It's really not that rare.

The diseases are different and the times and places change, but misopathists use the same strategies again and again.


The public forgets these events or how bad they are. They are not told about the similarities.

Sometimes editors calumniate the sufferers on cue, but bury the exoneration in the part of the newspaper nobody reads.

Sometimes exonerating the group too loudly would implicate themselves.

Its character

Organized misopathy can act directly or indirectly. It adapts its tactics to changing circumstances.

It sometimes uses propaganda, shifts resources away from science, or distorts practices in the medical industry.

It sometimes targets diverse facets of the manipulosphere simultaneously. For example, isolation of the group by concerted media attack, curtailment of its democratic and human rights, and extreme fake science, simultaneously.


Thus, it is driven and persistent. This is not indolence.

What drives organized misopathy

Organized misopathy is driven by incentives; it is a means to an end. It is not a misunderstanding. It is not a lack of facts.

It is not "disbelief", a "big boner"/"cock-up", or the fault of sufferers or advocates.

It is never due to any alleged feature of the disease (it can happen to any disease). And it is not "a thing of the past that got sorted out after Tuskegee".3

How it operates

Organized misopathy operates by setting and exploiting incentives. It also encourages base impulses, indolence, biases, etc.4

Thus, ordinary and institutional misopathy do the real work. They are the arms and legs. They implement it.

Organized misopathy doesn't have to be centrally controlled or involve direct orders.

Bottom line

When a population suffers because of planful violations of science and human rights, that can be organized misopathy.

It is systematic. Despite its name, it can appear disorganized at ground level, but its parts are aligned and they push relentlessly.

It gets worse until there is pushback. Unlike the other levels, nothing else can stop it, because it is driven by incentives.


But pushback does work. Even in fascism, people SPOKE OUT and it made a difference. History says that Action T4 took a hit because of public outcry.

What more reason is needed to be an activist?

Summary

I described:

  1. ordinary misopathy — prejudice
  2. institutional misopathy — institutional behavior
  3. organized misopathy — coordinated plans of action

Or perhaps:

level type of misopathy very rough description concrete example
1 ordinary prejudice, bigotry bullying
2 institutional institutional behavior, groupthink cock-ups
3 organized coordinated, systematic, planful corruption of science

If you follow mainstream news or academic papers, I think you will find examples of all three in various diseases.

Each level has a recognizable gestalt.

Sometimes people miss the higher levels

Sometimes people miss the higher levels, because the lower levels are usually present at the same time (they are the arms and legs).

The lower levels feel more tangible and personal.

However, the higher levels are vastly more consequential. A single event, such as a disease definition or a classification status, can profoundly affect millions of people for decades (example: making a large number of them progress to bedridden).

Conclusion

We took misopathy apart in only a coarse way, but we can answer our question now:

Some diseases are wronged because there are other levels.

People at level 1 go along with level 2, and people at level 2 use their rubber stamps for level 3. The levels of misopathy are linked.


What have you noticed? Please engage here and elsewhere, everywhere, online, offline, relentlessly. SPEAK OUT.

Samuel

Footnotes:

1

The population is defined by the goals of the perpetrators. Thus, the actions can target a set of diseases as one, or make politically desirable exceptions, etc.

Example: in Action T4, some disabled taking hospital beds were murdered while some disabled returning soldiers were glorified.

2

Of course, the goal is almost never to attack the group per se. Doing so is a means to an end.

3

It is common to believe each of those myths. Please also see invisibility.

4

The aside here has a little context.

2 comments:

LGT said...

Do you think you could write a post directed toward family or friends of people with wronged diseases, explaining:
some diseases are wronged and have been wronged throughout history
happens with many diseases today
the stakes are high (insurance, conflicts of interests, disability)
It can take decades for an emerging phenomenon to be established as a real disease
Wikipedia is an unreliable source of information and is likely manipulated by anonymous editors on controversial topics
If you go along with the "program" set by govt agencies, wikipedia, etc., you are not helping your loved one but rather inadvertently being tricked into abuse (due to a lack of learned skepticism of official stories)

Samuel Wales said...

Hi LGT,

Such a post is urgently needed, and your points are excellent.

I'm not sure I'm the best person to write it, and if I were, it would take a long time. For health reasons, almost all of my posts take years and months to write. I have a backlog of partly-edited posts started many years ago. Also, vetting facts takes a long time. I don't post anything unless I am confident of it.

Would you like to write it?

A post with those points would be well suited to The Whole Thing too (a collaborative project, not to be done just by me). Even though the target audience differs, I think family and friends could get a lot out of it.

Imagine us having a real movement of sufferers and carers at all levels of severity, all of whom personally feel a strong duty to be an activist no matter what.

At that point it is a small step to getting family and friends to join with a sense of mission, this time directed against the perpetrators instead of sufferers — and implacably demand scientific progress, all HIV/AIDS-style. They will notice we have a real movement and get involved. This happens, but it takes far more activism on our part.

Which takes, in my view, freeing our own minds.

I will be posting more about organized misopathy. I think it's a concept that needs everybody to recognize it.

IMO it's time. Hope you agree.